The Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury (DCoE), cosponsored a workshop titled, “Advancing Integrated Research in Psychological Health and Traumatic Brain Injury: Common Data Elements” with the National Institute of Neurological Disorders and Stroke, the Department of Veterans Affairs, and the National Institute on Disability and Rehabilitation Research, on 23 and 24 March, in Silver Spring, M d.
The purpose was to assemble subject matter experts (SMEs) to develop recommendations for standardized definitions, variable sets, screening and assessment tools and procedures to advance the state of the science in psychological health (PH), traumatic brain injury (TBI), and the overlap of those entities. It served as the culmination of more than three months of work by eight specific working groups that focused on demographics, biomarkers, TBI neuroimaging, outcome measures, depression, post-traumatic stress disorder, substance abuse and operational stress. In all, 137 SMEs, representing 50 agencies (including 21 universities, 19 Department of Defense entities, nine National Institutes of Health institutes, and three countries) attended one or both days of the workshop.
Members of these organizations and SMEs came together in an unprecedented face-to-face meeting to discuss methods of improving data elements in PH and TBI research so that more robust comparisons can be made across studies. This workshop was an opportunity to bring the working minds together to discuss and improve these practices.
Experts agree that there is a lack of uniformity with current research and a need for harmonization of research components such as biomarkers, imagery, and classification systems. This will allow for a better understanding of the research and lessons learned and allow for a wider diagnosis of best practices to better develop the field of PH and TBI.
The working groups’ recommendations for how to measure and present information in their fields may be helpful to all upcoming PH and TBI clinical research studies in standardizing their fields.
The workshop was organized by the DCoE Research, Quality Assurance, Program Evaluation, and Surveillance Directorate.